Meta's U.S. and Canada Screened Individual Privacy Notice (Ethnio)

The U.S. and Canada Screened Individual Privacy Notice outlines how Meta Platforms, Inc. handles Personal Information collected via the Ethnio platform from individuals residing in the U.S. and Canada who respond to screening questionnaires to determine eligibility for research studies. This notice specifically applies to Personal Information collected through these questionnaires and registration for appointments, not to other data Meta may gather from users of its commercial products or services. It also notes that local practices and legal requirements may cause privacy practices to vary, with specific additional information for Canadian individuals provided.

Personal Information, as defined by U.S. and Canada Privacy Laws, includes data that identifies or can be reasonably linked to an individual. It does not include aggregated or de-identified information. Meta processes this information to determine study eligibility, gauge willingness for future study contact (with consent), schedule studies, process gratuity payments for participants, and to produce anonymized or de-identified data for research purposes. Meta maintains de-identified data in that form and does not attempt re-identification.

Meta may collect various categories of Personal Information, including identifiers (name, email, phone number), age/date of birth, data with special protections (race/ethnicity, gender, disability, marital status), location information, audio/visual data, professional/employment information, education information, and other self-provided details, including sensitive personal information. This data is used to determine study eligibility, schedule studies, establish contact for future studies, and process gratuity payments. This information may be disclosed to Meta group companies for eligibility and scheduling, to service providers for questionnaire processing, and as required by law.

For U.S. individuals, Meta does not sell or share Personal Information and does not knowingly sell or share data from Screened Individuals under 18. Personal Information is sourced directly from your responses to screening questionnaires. Meta retains Personal Information for up to one year for the purposes listed, and longer if required for legal obligations or to protect its interests, with retention periods determined case-by-case based on legal requirements and legitimate purposes. Information may be transferred, stored, and processed in various locations globally where Meta or its service providers have infrastructure, making it subject to local laws and access requests.

Depending on residency, individuals may have rights under U.S. and Canada Privacy Laws, including the right to know/access their Personal Information, request correction, request deletion, and non-discrimination. The right to limit processing of Sensitive Personal Information is also applicable. To exercise these rights, or to appeal a consumer rights action or withdraw consent, individuals can email [email protected]. Meta may require identity verification, potentially requesting government-issued ID. These rights can be exercised directly or through an authorized agent.

Canadian residents provide consent for the collection, use, and disclosure of their Personal Information by submitting it to Meta or its service providers, in accordance with this notice. Consent can be withdrawn by contacting [email protected], though this may affect Meta's ability to provide certain services. Personal Information retention adheres to applicable laws. Canadians have the right to access and request correction of their Personal Information, with Meta taking reasonable steps to ensure accuracy and completeness. A minimal fee may apply for access requests. For further questions, individuals can contact [email protected].